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Duke Hosts PPMD Conference and Family Meeting

Friday, November 11, 2016
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The Duke School of Medicine is hosting a Parent Project Muscular Dystrophy (PPMD) conference on Friday, November 18 and free family meeting on Saturday, November 19. Both events will take place in the Mary Duke Biddle Trent Semans Center for Health Education from 8 a.m. to 6 p.m. Parking is available in Duke PG1 located at Duke South on Trent Drive.

Conference

"Addressing Life Long Needs in Duchenne Muscular Dystrophy" 

Course Objectives

Participants will be able to:

  • Describe etiology, pathology, pathokinesiology, and signs/symptoms, including differential diagnosis of DMD
  • Discuss common medications and supplements seen in this population
  • Discuss current understanding of DMD based on longitudinal research studies
  • Discuss and describe identified biomarkers in DMD related to current research outcomes
  • Discuss, describe, justify, and determine roles of PT and OT in assessment, intervention, and care across the ICF and across the lifespan: including selection of appropriate therapy goals, exercises, stretching, and optimizing function across multiple age ranges
  • Determine and justify equipment needs including orthotic intervention and assistive technology across multiple age ranges, and will be able to discuss clinical problem solving and decision making regarding equipment and orthotic intervention in a variety of contexts.

In support of improving patient care, Duke University Health System Clinical Education and Professional Development is accredited by the American Nurses Credentialing Center (ANCC), the Accreditation Council for Pharmacy Education (ACPE), and the Accreditation Council for Continuing Medical Education (ACCME), to provide continuing education for the health care team.

The designation was based upon the quality of the educational activity and its compliance with the standards and policies of the Accreditation Council for Continuing Medical Education (ACCME), the Accreditation Council for Pharmacy Education (ACPE), and the American Nurses Credentialing Center (ANCC).

Registration

Registration deadline is November 11, 2016 and cost is $100 for professionals.* Please register online: www.parentprojectmd.org/ESODurham.

*PPMD will consider providing scholarships to anyone interested that would not otherwise be able to pay the registration fee. If you would like to apply, please contact Kaylan Moitoso at kaylan@parentprojectmd.org.

About the Speakers
 

Laura E Case, PT, DPT, MS, PCS, C/NDT, is assistant professor in the Doctor of Physical Therapy Division in the Duke School of Medicine. A pediatric physical therapist for more than 35 years and a board certified clinical specialist in pediatric physical therapy since 1993, she has dedicated her career to the treatment across the lifespan of individuals with childhood onset neurological and neuromuscular disorders including DMD. She has been involved in clinical trials in DMD and participated in developing the DMD Care Considerations. She teaches and consults internationally, has worked on CDC Task Forces on DMD, and served two terms as NC State Representative to the APTA Section on Pediatrics. She has numerous publications and received the Duke Presidential Award for Meritorious Service in 2002. She has a BS degree in PT from Ithaca College; an advanced MS degree from UNC at Chapel Hill, majoring in pediatric PT with minors in teaching & research and receiving the Outstanding Thesis Award; a DPT degree from MGH Institute of Health Professions; and is enrolled in a PhD program. She is NDT Certified, completing both Pediatric & Baby Courses. She is a CINRG Evaluator and member of the CINRG Executive Committee, and has been involved in PPMD for more than 20 years.

Julie Coats, MPT, C/NDT is senior pediatric physical therapist at Duke Children’s Hospital in the Physical and Occupational Therapy Department. Julie has a BS degree in health science and a master’s degree in physical therapy from the University of Florida, and is currently working on her clinical doctorate in physical therapy at the University of North Carolina at Chapel Hill. She is a CINRG Evaluator and has participated in numerous clinical trials in DMD. Julie is an APTA credentialed clinical instructor and is NDT certified, having completed both the pediatric and baby courses.

Robbin Newton, MA, OTR/L, BCP, C/NDT, has been the pediatric outpatient coordinator at Duke Children’s Hospital in the Physical and Occupational Therapy Department since 1985 and has recently been named as the new PT/OT pediatric division manager, starting Dec 1, 2016. She has been participating in the update of the DMD Care Considerations. Robbin has a BS in occupational therapy from East Carolina University; a master's degree in liberal studies from Duke University and a post-graduate certificate in assistive technology from East Carolina University. She is a board certified in pediatrics by the American Occupational Therapy Association and is NDT certified.

Family Meeting

This free, day-long meeting at Duke University Medical Center packed with important information Duchenne/Becker families need to know. Breakfast and lunch will be provided. Click here for a detailed agenda.