Three Duke faculty members -- Ebony Boulware, Laura Schanberg, and Kevin Thomas -- recently received funding awards from the Patient-Centered Outcomes Research Institute (PCORI).
“These projects were selected for PCORI funding not only for their scientific merit and commitment to engaging patients and other stakeholders, but also for their potential to fill an important gap in our health knowledge and give people information to help them weigh the effectiveness of their care options,” said PCORI Executive Director Joe Selby, MD, MPH.
Continuing Funding for Rheumatology Network
Laura Schanberg, MD, professor of pediatrics, faculty member of DCRI, and co-chief of the Division of Pediatric Rheumatology, will receive $1.3 million from PCORI to expand the Patients, Advocates, and Rheumatology Teams Network for Research and Service (PARTNERS). PARTNERS is one of 33 health data networks that comprise PCORnet, a large, collaborative research initiative that links researchers, patient communities, clinicians, and health systems in research partnerships.
PARTNERS focuses on improving the lives of children with rheumatic diseases through research that matters to patients. PARTNERS will use the new funding to further recruitment and engagement efforts, and also to enhance its informatics platforms. One new project will include enabling robo-calling to patients to further incorporate patient-reported outcomes into a robust dataset.
“Working with patient representatives in PARTNERS is invigorating and has given me a much broader understanding of what research means to patients,” said Schanberg, PARTNERS’ principal investigator.